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Re: Give me back my hand- (just kidding) » Elizabeth

Posted by shelliR on July 29, 2001, at 23:51:29

In reply to Re: Give me back my hand- (just kidding) » shelliR, posted by Elizabeth on July 29, 2001, at 14:04:32

Hi Elizabeth
>

>
> You said you have DD-NOS. "NOS" covers a lot of territory -- what does it mean in your case? (if you're comfortable talking about that here)

It's complicated and it's sounds much more bizarre than it feels, I am so used to it by now. I have different personalities inside; girls clustered around three and eight, related to sexual abuse at those ages. If you heard them you would not think they are me--the three year old especially, not only has the voice of a three year old, but has the verbal patterns of a three year old: repetition, disinterest in answering questions, etc. and chatters on and on. I worked a lot with them in therapy with EMDR and in body therapy, and at this point while still present, they do not dominate my life. I know there is more work to do with one of the 8 year olds., but I don’t think I am quite ready yet. I am co-conscious with them, so I don't have a DID diagnosis.; although really it depends on who does the diagnosing. I do not consider myself to have DID because I do not lose time. Only when I am sound asleep, the kids do have conversations with others that I have no knowledge of until I'm told. But to me that doesn't really count as not co-conscious. A child was the first to wake up after my knee surgery, but I had already given notice to the anesthesiologist that this might happen, and explained how alters come to be. So everyone was sort of pleased when they got to meet one of the kids.

But, also, generally when I say I dissociate, I mean I feel unrelated to my body and spacey, rather than these children are "out".

>
> Most of the doctors I've spoken to in Boston, at least, seem to feel that patients are often convinced (by suggestion) that they have DID by overzealous therapists. A lot of doctors in the Boston area don't consider DID even to be a legitimate dx!
>
That is really sad, because there is absolutely no doubt in my mind that it is real. I have met many multiples in my hospitalizations and I think that it is a rare thing that a therapist convinces a patient that she has DID unless it is a true diagnosis. There are some cases that are called multiple that I would call ddnos. The sad part is that although the prognosis is good for DID, it is a hellish journey. Personalities that one doesn't even know exist, ruin jobs and relationships and definitely put lives at risk. Can you imagine what it feels like to find yourself in LA from Washington with no clue of why you are there? Or to lose a job because a personality inside of you said extremely inappropriate things that you have no idea about. Anyway, I feel a lot of passion about it because people who are multiple have generally experienced a horrific childhood, and then as adults they have still have the coping mechanism that saved them as a child, but now it just screws them up more. So when doctors deny the validity of the diagnosis at all, I see it as another form of abuse for these patients.

It is true, however, that at times I can’t deal with the histrionics of some people who are DID and have no friends now with that diagnosis. I had a friend with DID who let her eight year old personality talk at restaurants, and other public places and even had a birthday party for her. I was not at all comfortable with that and walked away from that friendship.

BTW, Dr. James Chu who used to run the dissociative disorders unit at McLean Hospital was promoted to chief of hospital clinical services. He has an excellent reputation in the field of dissociative disorders. I don’t know who the doctors you are talking to in Boston are—because his work is pretty well known and respected, and not just locally. I think that
the doctors you are speaking to, I can only consider to be at best, ignorant in this area, although as I said, I might agree that *some* people are diagnosed with DID, who really have a lesser dissociative disorder .

re nardil:
The reason I don't think I can do nardil and oxycontin and concerta is that I took a huge fall into darkness the third day I took prozac, oxy and concerta together. It may have been the crash of the speedball you referred to.
> I'd attribute that more to the stimulant and perhaps the opioid than to Prozac.

right, probably the combination of the stimulent with the opiate. It may be revisited. Prozac won't be.
>
> > I could try nardil and concerta together and drop the oxy. The good thing about stimulents and opiates, they work fast and no waiting period, so it's not like making a huge decision to try one over the other.
>
> That's very true. But there is the potential for bad interactions between Nardil and Concerta, whereas oxycodone is probably fine to use with Nardil. (Some of the synthetic opioids, such as Demerol and Ultram, shouldn't be used with MAOIs. Morphine, codeine, hydrocodone, etc. -- the natural and semisynthetic ones -- are fine.)

I've never had an interaction with stimulants and nardil before and I've tried most of them.(adderal, ritalin, dexadrine) . So I wouldn't anticipate a reaction. Concerta is the only stimulant which didn't make me feel absolutely awful and I didn’t try it until I had stopped nardil.

> > I'll let Lorraine try parnate first, although if our reactions to opiates are any indication, we don't react similarly to chemicals.
>
> So, Lorraine is your guinea pig? :-)

for sure.
>
Shelli

p.s., do you have a compulsive disorder re spelling :-) If so, I'll drive you nuts. I was most upset to stop taking seglegiline because I had finally learned how to spell it.


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poster:shelliR thread:67742
URL: http://www.dr-bob.org/babble/20010725/msgs/72449.html