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Re: Temporal Lobe Epilepsy-anyone out there? Zo

Posted by Mitch on June 12, 2001, at 12:37:52

In reply to Re: Temporal Lobe Epilepsy-anyone out there?, posted by Zo on June 12, 2001, at 4:01:08

> > I am currently taking Neurontin 400mg/day and Klonopin. I think if insurance looks ok I will see a neuro soon and get some more testing. I only have had a standard EEG. I want to get a sleep/medication deprived 24-AEEG and an MRI. After that I will see.
> >
> > Mitch
> 400 is a pretty low dose. I can't go under 500, and that was after 2 years at 900. Look on the Mass Gen Neuro Boards - people strongly advise avoiding regular neuro, in favor of an epileptologist. . .and don't be surprised if nothing shows up on the sleep-deprived. Are you having debiliating deja vues or other symptoms? I just control it with Neurontin with my pdoc. . .and Klonopin is another excellent GABA calmer.

My symptoms become accentuated when taking SSRI's and some other antidepressants. Nothing is really debilitating. Although they started when I was about 11 or 12. I don't think I could find an epileptologist where I live. I am beginning to agree with you about the AEEG. I think an MRI ought to be done first, then maybe the AEEG. I am trying to work the Neurontin dose back up very carefully. When I see my pdoc next week I am going to 1) ask for a referral to a neuro, and 2) see about bumping the Neurontin another notch up to 500mg/day-say 300mg at bed time and 100mg twice during the daytime. As far as avoiding the regular neuro goes-I am not entirely sure this is epilepsy, there is also some suspicion about early-onset Parkinsonism as well. Other suspicions are an endocrine disturbance that is masked somehow.
FWIW here is a list of all the diagnoses I have been through:

bipolar II rapid-cycling
Intermittent explosive disorder (anger attacks)
social anxiety disorder
panic disorder with agoraphobia
simple phobias




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