Posted by Mitch on June 10, 2001, at 22:52:46
In reply to Re: Temporal Lobe Epilepsy-anyone out there?, posted by Zo on June 9, 2001, at 3:29:11
I am currently taking Neurontin 400mg/day and Klonopin. I think if insurance looks ok I will see a neuro soon and get some more testing. I only have had a standard EEG. I want to get a sleep/medication deprived 24-AEEG and an MRI. After that I will see.
Mitch
> Hi Mitch, I've had TLE since I was a child, but easily kept to myself the weirdness that would happen with flickering lights. You'll find the "big and small" symptom talked about alot on the Mass. Gen. Neruo boards - excellent source. Didn't get diagnosed, despite EEG, til Neurontin Rxed for fibromyalgia took my daily "funny spells" away. . .along with certain lights and motions my eyes cross - yes, really! - and as for hypergraphia, I've turned it into a caareer as a novelist. Sometimes the seizurey periods now are even kind of pleasant, they feel inspired, but not manic. Brought on by too much sleep. . .Neurontin is a real stinker to get on and get up to the right dose; one must overshoot the mark to know what it is, and I was so wiped out for a month, but there is a list, Neurontin-L, so I knew to hang in there. The fibromyalgia's gone. . .and so, for the most part, is my lifelong "secret."
> Best of luck,
> Zo
poster:Mitch
thread:63474
URL: http://www.dr-bob.org/babble/20010605/msgs/66094.html