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Re: Temporal Lobe Epilepsy Mitch

Posted by Elizabeth on May 19, 2001, at 14:52:55

In reply to Re: Temporal Lobe Epilepsy-anyone out there?, posted by Mitch on May 19, 2001, at 2:22:29

> ... Why I say this is that I have taken various anti-convulsant meds for bipolar and I haven't found any miracles. *Neurontin* I find "wakes up my head"-whatever that means.

You said you'd taken Adderall. How did that affect you in regard to the TLE-like symptoms?

> The derealization/depersonalization thing happens when I feel "trapped" or "boxed-in" and can't "escape". I have NEVER had a panic attack outside. It has always been in a "box" of sorts.

That sounds like you might have agoraphobia (or a risk factor for agoraphobia): fear of not being able to escape. Ironically, people often develop agoraphobia as a result of PAs -- they are afraid of having an attack in a place or situation they can't escape from -- and end up having PAs that are triggered by agoraphobic feelings!

> Like I said above there is something peculiar about Neurontin. It wakes me up. This is difficult to describe. If I stop it suddenly I lapse into a *profound* lethargy/sleepiness with cognitive problems. But if I took a high dose of it it makes me real nervous/agitated/spacey.

That sounds very much like what buprenorphine does to me: I feel more alert and clear-headed on it than off. If Neurontin does that for you, then that's lucky, whatever the reason. It also sounds like the combination of Neurontin with very low-dose Adderall helped even more.

300mg Neurontin isn't a lot, BTW. Have you ever tried taking more?

Re Adderall vs. Dexedrine: Adderall is supposed to be longer-lasting and smoother (this is because of the funny combination of amphetamine isomers). If the fluctuations in your level of alertness really bother you, you might try slow-release Dexedrine ("Spansules") as an alternative to Adderall. There's also a relatively weak but long-lasting stimulant called Cylert that isn't related to amphetamine. I took it for a few months in college and it helped me to feel alert during the day and maintain a regular sleep schedule.

> Do you think just plain Tegretol would be a better idea?

No, if oxcarbazepine made you sick, carbamazepine is liable to be worse.

> I take some Klonopin now-would Clobazam or Tranxene (clorazepate) work better??

I don't know much about clobazam except that it's chemically distinct from other benzodiazepines and weaker. (It's not marketed in the U.S.) Tranxene is longer-lasting but less potent than Klonopin and can be taken just once a day. Different people have a lot of different opinions as to which benzo is the best, so it's hard to predict.

Anyway, good luck with things. I hope you can resolve your situation.





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