Posted by Abby on May 11, 2000, at 11:27:15
In reply to Re: Terrible bind., posted by Noa on May 11, 2000, at 10:11:25
> What about calling someone at NIH? You are in a severe bind, with several critical illnesses.
I don't think that NIH will do referrals. I don't know what kind of insurance you have, but here are a couple of options.
Start by finding a psychiatrist who is willing to work with you despite your need for interferon. Explain your history and the fact that you're having a hard time getting your illnesses treated, because each specialist is afraid of messing up something. Ask the psychiatrist if s/he would be willing to work as part of a team. Call the gastroenterology people from all the Connecticut and New York places---even if you can't make it to their clinics, they may be able to point you in the right direction. Diabetes is a very serious disease, but you should be able to manage it with a good internist. Make sure that your internist is in communication with the others.(I don't know about the SAMe, but try the milk thistle; it can't hurt.)
Call Yale's department of psychiatry for referrals. Then try Columbia, NYU and Albert Einstein Medical College. You might even try UCLA which has a 1-800 number.
Also, you can call Johns Hopkins. Their chair is superb.
Good luck. I know it's hard. My Dad has hepatitis c from a blood transfusion (which he got when he underwent coronary bypass) and diabetes too.