Psycho-Babble Medication | about biological treatments | Framed
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Need AD that doesn't increase dystonia

Posted by anne on March 1, 1999, at 16:57:10

I am 39 years old with multifocal dystonia duration 10 months. Previously I had a focal dystonia (writer's cramp) x1 year. I thought I was coping pretty well with the progressing disability and pain and made a decision not to treat the dystonia agressively but to try and just live with the symptoms as best I can due to the cognitive side effects of the drugs. In December, the symptoms worsened and I started Klonopin 0.5 at bedtime to take the edge off the muscle cramps and aching in order to sleep. I was also taking Elavil 10 mg for sleep. Two weeks into Klonopin I became *depressed*. I didn't feel like myself anymore, no motivation, difficulty thinking (bad when you are a grad student) and no interest in food. My neurologist had previously tried me on Zoloft last summer (he thought I looked depressed)but it was very agitating (1/2 of a 25 mg tab)and increased my finger movements tremendously and I had facial movements for the first time. I was afraid to try another SSRI but my internist convinced me to try Paxil. It is impossible to know if it was a coincidence but my symptoms seemed worse again and I found Paxil to make me want to lay on the couch all day at 20 mg. Third try, Effexor XR. Makes me feel better than anything so far but had to cut the dose back to 37.5 due to severe insomnia (no Elavil x 1month). Also my neck hurts tremendously. While I appreciate my internist trying to help me cognitively, I'm really going downhill physically pain and movement-wise. The internist wants to add trazadone now for sleep then increase the effexor again. I'm afraid of more drugs by now, nothing seems to work right. All my docs say it's just trial and error, even the neuro's and I'm tired of all these experiments. I don't know where to turn.




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